Archive for the ‘Fibromyalgia’ Category

Doctor Follow-up

April 30, 2009

-I’d like to thank The Vinyl Villager for this post. I started to reply to the comment he left on yesterday’s post and about the time I got to *** I realized I wasn’t “commenting” I was essentially writing a post…LOL

Here’s his comment:

Hope you all have a clean bill of health! I friggin hate going to the doctor…

Unfortunately for me, I have several "ongoing issues" – the fibromyalgia, and headaches that apparently have no basis in anything any kind of test can find, but that essentially never go away :(. I do however take a medication that, for a short time, make them ALMOST gone…of it’s a narcotic, and despite having taken it for almost 20 years now, but NONE while pregnant with the boy 🙂 – when I move from Terre Haute to Indy it took a while to find a doctor who believed I wasn’t a drug addict. When he moved about 7 years ago, it took another two years, maybe three, to find my current doc, and we had several run-ins before I finally convinced him I wasn’t hooked on it or abusing it. It took me not taking any for two months (confirmed by blood tests), and me almost (and really, really, realllllly wanting to) literally coming to blows with one of the other providers in the office to do it (that incident may be an upcoming post, actually…). Wow, that was more than you were looking for, huh..? Anywhoooo, he added a high blood pressure med for me (no idea why my blood pressure would be high…) and refilled all the other crap I needed (I take about 8 or 9 different meds).

Hunny, on the other hand, not so good*** (a bit much for a “comment, huh..? although I have left longer ones…*grin*). For those who don’t know Hunny is diabetic. This is a recent discovery (about a year & a half ago, when he went for his DOT physical, his sugar was high, so they refused to ‘stamp’ it & sent him to the doctor. The test they do to determine what the average has been for like the last 2-3 months, called an A1C That’s A one C) came back at like 10% or 11% . According to Diabetes Health “The normal level of A1C in people without diabetes is approximately 4% to 6%. In 1994, the ADA began recommending specific A1C treatment goals based on the results of the DCCT. From that time on, the goal for most people with diabetes has been less than 7%. Each 1% change in A1C represents a change of approximately 35 mg/dl in average blood glucose. Not good. He was started on Janumet & Actos, changed his diet, and was doing very well. His blood sugar readings were running between 85 and 140ish – not GREAT but not really bad either. But then, shit happened, and happened some more, and of course, much most of the rest of the general population, we are having the regular how-the-Hell-do-I-pay-all-these-bills-with-this little-bit-of-money? stuff going on. They’ve cut hime back to about 40 to 45 hours a week (Hunny is your atypical, 1950’s sorta guy. Even though I work, and we have more of a partnership than most in a lot of ways, in his head it’s still his responsibility to not only pay all the bills, but also support me in the style I’d like to become accustomed to…) SO, the stress went up, and his attention to his health went down….He finally decided to start checking his sugars again MONDAY – ‘cuz we had doctor appointments on Wednesday. The first reading..? 465!!!  For those who have no clue what that means, an average person’s sugars run 80 – 90 on average. See a problem here..? So he now has another medication, and a bunch more stress. Stress raises blood sugar. Vicious cycle. Why stress..? Well, to begin with HE COULD DIE FROM THIS. In addition (‘cuz yanno that’s not enough…) if he has to start taking insulin shots, he could lose his job. The Federal government say that if you are diabetic, and you take insulin shots, you can’t hold a CDL…although there is a small glimmer. It seems that if you don’t go out of state/over the road (he doesn’t) you can get a waiver. “That’s Wonderful” you say. Did I mention that the waiver has an associated cost (because what government related anything doesn’t?) $2700 a year. Every year. Where’s my bailout..?

*sigh* why do all my “pots of gold at the end of the rainbow” turn out to be filled with coal..? Oh well, such is life. Either we’ll get by or we won’t : )

There’s more…the boy got a Z pack & a blood draw (still waiting on results), and seems to be doing much better, as I said, more to come : )

Gotta go, the boy gets off the bus in about 10 minutes & I’m sitting here in my underwear, letting the new ink air out *grin*

See ya laterzzzzzzzzzzzzzzzzz!!!!!   

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It’s Baaaack

April 21, 2008

Well. it’s back. The pain that is. Ok, that’s not exactly accurate ‘cuz it never really went away. It just had lessened enough for a week or so that it wasn’t in the forefront of my thoughts. What pain, you say? That’s a good question. It’s not in any specific part of my body – well it is, but not always the same part of my body. Sometimes it settles in my lower back and hips, making it painful to walk, stand, sit or lie down. It has also settled in my calves, making it feel as if I had done a thousand lunges ( I hadn’t). It has been in my spine & neck. It has been in my forearms. Currently it is making it’s presence felt in my shoulders and upper arms. It hurts. A lot.

How weird, huh? The magical moving pain…lol. It will usually settle in an area for a week or so, than wander to a different body part. The last week or so, it has been almost non-existent. Not gone, no, never gone, but very mild. To the point I could basically ignore it. But this morning it has reared it’s ugly little head to say “Hey, didja miss me? I’m back.”

From what research I’ve done, I think it may be Fibromyalgia. My doctor has also suggested this, without my mentioning it first, but he is hesitant to make this diagnosis. He wants to rule out other stuff first. I’ve had tests – dear Goddess have I had tests. Tests (Heh, I types testes there…roflmao) for rheumatoid arthritis, for osteoarthritis, body scans, tests with wires running to me, one where I was injected with radioactive stuff. All negative. I have another tomorrow. I wish he would make a determination and get on with it *sigh*

There is no cure for fibromyalgia, but there are treatments, It isn’t fatal, just life long pain….but that I can deal with, mostly 🙂 But the diagnosis, any diagnosis at this point, would be reassuring. At least then I would know I’m not imagining things. I’m not losing my mind (not that I have much left of that…) I’ve had intense headaches for years. Well, really just one looooong headache that varies in intensity. I can sleep 12 hours (mmmmm…sleep) every night and still be exhausted. I have other issues I won’t go into here, but that are considered symptoms of fibromyalgia. It would explain a lot. (I don’t really, in the “front” of my brain think I am, but there’s that evil little voice in the back saying “Pain doesn’t move around your body! You’re looking for attention. Want people to feel sorry for poor little you.” I DON’T. I’ve tried to beat this voice into submission, but it’s pretty tough. I don’t listen to it much, but sometimes, laying in bed, trying to find a position that is comfortable for more than two minutes, it’ll catch me off-guard and start in…

Ok, enough sniveling for now. I’ll probably be back later, hopefully in a better frame of write…heh.

See ya laterzzzzzz

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